Paediatric Rheumatic Diseases
Information Website

Information for families and patients affected by Juvenile Rheumatic & Musculoskeletal Conditions.

Patient Support Groups

A list of paediatric rheumatology patient support groups around the world. Please click on individual entries to get full details.

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Juvenile Idiopathic Arthritis (JIA)
South Africa (English) Website: https://arthritiskids.co.za/
Categories: Patient Organisations
Paediatric rheumatic and autoinflammatory rare diseases
Italy (Italian and English) Website: www.amri.it
Categories: Patient Organisations
Juvenile Idiopathic Arthritis
England (English) Website: www.ccaa.org.uk
Categories: Patient Organisations
Rheumatic diseases
Cyprus (Greek and English) Website: www.rheumatism.org.cy
Categories: Patient Organisations
All rheumatic diseases.
Germany (German) Website: www.rheuma-liga.de
Categories: Patient Organisations
Immune mediated diseases
Slovenia (Slovenian) Website: www.imuno.si
Categories: Patient Organisations
Rheumatic and musculoskeletal diseases
Greece (Greek and English) Website: www.arthritis.org.gr
Categories: Patient Organisations
All rheumatological diseases
Ireland (English) Website: https://icanireland.ie/
Categories: Patient Organisations
All rheumatic diseases
Israel (Hebrew and English) Website: www.inbar.org.il
Categories: Patient Organisations
JIA and related childhood rheumatic diseases
Australia (English) Website: www.jafa.org.au
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA)
UK (English) Website: www.jarproject.org
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA)
The Netherlands (Dutch & English) Website: https://jeugdreumavereniging.nl
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA) and associated diseases
France (French) Website: www.kourir.org
Categories: Patient Organisations
All rheumatic and musculoeskeletal conditions
Spain (Spanish and English) Website: www.lire.es
Categories: Patient Organisations
Lupus and associated autoimmune conditions
UK (English, some printed documents also in Welsh) Website: www.lupusuk.org.uk
Categories: Patient Organisations
Paediatric Rheumatic diseases
Belgium (Dutch) Website: www.kinderreuma.org
Categories: Patient Organisations
Paediatric Rheumatic diseases
Greece (Greek) Website: www.sygopaa.gr
Categories: Patient Organisations
Childhood rheumatic diseases.
Uruguay
Categories: Patient Organisations
Children and young adults with rheumatic and auto immune related diseases.
Austria (German, English) Website: https://rheumalis.org
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA)
Scotland (English) Website: www.snac.uk.com
Categories: Patient Organisations
Autoinflammatory diseases
The Netherlands (Dutch, with resources in Dutch, English, Turkish and Arabic) Website: www.kaisz.nl
Categories: Patient Organisations
Systemic JIA, Still’s Disease, Macrophage Activation Syndrome
Headquartered in USA but patients from all across the world (English) Website: www.systemicjia.org
Categories: Patient Organisations
All rheumatic conditions
Sweden (Swedish and English) Website: www.reumatiker.se
Categories: Patient Organisations
Rheumatic conditions (in people aged 0 – 30)
Sweden (Swedish) Website: https://ungareumatiker.se/
Categories: Patient Organisations
Arthritis and related MSK conditions
UK (English) Website: www.versusarthritis.org
Categories: Patient Organisations
Rheumatic conditions in young people aged 16 to 30
Netherlands Website: www.youth-r-well.com
Categories: Patient Organisations
JIA and Auto inflammatory diseases
Australia (English) Website: www.zoesangels.org
Categories: Patient Organisations

PReS - The Pediatric Rheumatology European Society

PReS website for patients and families, with Juvenile Rheumatic & Musculoskeletal Conditions

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